Hope Mills, N.C. — Darth Vader and some of his pals from the “Star Wars” universe brightened the day of a very sick Hope Mills boy on Thursday.
Creed Kolasa, 5, loves “Star Wars” and was shocked when a Storm Trooper appeared at the door of his day care classroom at Hope Mills United Methodist Church.
Four and a half years ago, Creed was diagnosed with Duchenne muscular dystrophy. He has been fighting to survive ever since.
“It’s a muscle wasting disease that you don’t know when or how it’s going to progress,” said Creed’s mother, Jessica Kolasa. “We’re in a clinical trial right now, trying to stop the progression.”
Duchenne muscular dystrophy is a rare disease with about 20,000 new cases each year worldwide. The treatment at Duke Children’s Hospital can be painful and time consuming.
“We get there early, sometimes stay the night before,” said Creed’s father, Doren Kolasa. “He has to have infusions there for hours, usually anywhere from six to 12 to 14 hour days.”
Right now, there is no cure for Creed’s disease, so his family is making sure his wishes and dreams come true.